505 replies to this topic

[Bobby]

Great news!

[iceman]

Good Afternoon Lee.

 

Lovely news to see my friend. What, with other very sad news, it is very nice to see this good news. It makes me feel so guilty for getting so down about my back problems (injection in to nerve root being undertaken tomorrow).

 

My most sincere hopes that things stay clear for you and Alex (keeping fingers and toes crossed).

 

Warm wishes and the very best of regards to you both...

 

..icey

[IWOOT]

Thank you for sharing your updates - it's lovely to read some good news. I can't begin to imagine what you have all been through but this thread certainly brings into focus what's important in life. Love to you and your family

[ghand]

Nice one fella 👍

[CocoPops]

Thanks for everyones comments. Along the way, we've tried to raise awareness (2 or 3 Radio Interviews, linked earlier in the thread) and more importantly set up a "Supporters Group" in Alex's name: https://www.thebrain...ex-cripps-fund/ Through this supporter group, you will see that we've raised £7,364.45p so far. This has been through 10k runs (me), 10k twilight walks (Alex), Garden Parties and general fund raising. Not sure this money will directly affect Alex's treatment, but if it helps find a cure or make future brain tumour suffers lives that bit better, then that's all good with us. Thanks!! Lee.

[iceman]

Gosh Lee...well done Sir.

 

It is lovely to see the commitment and hard work pay-off in such a great fund raised. It warms the heart when a link in the chain is formed in order to give back to others, it would be so much easier and totally understandable, for you to take steps forward carrying the hopes of a brighter future in the light of your good news and not look back but, to stand fast and fight for that extra link in the chain in order to benefit others, shows, in my mind, the 'hero' gene.

 

Sincere and heart felt congratulations on all fronts to the two of you...

 

..Luv you both it 

 

 

..icey

[Andrew aka Stuwy]

[casino]

Good to see the VX family doing its thing when it's needed. Pete.

[FLD]

Thanks for everyones comments. Along the way, we've tried to raise awareness (2 or 3 Radio Interviews, linked earlier in the thread) and more importantly set up a "Supporters Group" in Alex's name: https://www.thebrain...ex-cripps-fund/ Through this supporter group, you will see that we've raised £7,364.45p so far. This has been through 10k runs (me), 10k twilight walks (Alex), Garden Parties and general fund raising. Not sure this money will directly affect Alex's treatment, but if it helps find a cure or make future brain tumour suffers lives that bit better, then that's all good with us. Thanks!! Lee.

 

IMO opinion awareness is the biggest barrier to getting the correct treatment.  Things are changing in our understanding of disease mechanism and things like CT-DNA screens can be vital diagnostic tools yet many doctors aren't even aware of them yet alone using them.  These screens help identify the right course of treatment for each person to the extent that a drug no longer targets a particular disease set it is person specific...well almost. 

 

Shout loudly Mr Pops.  Someone will listen.

[CocoPops]

Results day again tomorrow,another 3months passed. Not sure how I feel really, it's hard to feel excited (not sure it's the right word) justo case it's bad, but equally you can't let the wait get you down in case it's good news. So, anyway, back here tomorrow to say how it's gone

[techieboy]

Fingers crossed, here.

[FLD]

:yeah that:

[Mangham54]

Hope for the best.

[myles]

Good luck. I know to a certain extent where you are coming from; we are always waiting on the results of lung function tests for my daughter and feel as though we are always hanging waiting for the bad result. I really hope you get the result you are hoping for.

[ChrisS1]

Hope to hear some good news today

[CocoPops]

Cross post from FB:

[Sutol]

Fantastic news Lee! I know all to well of the anxiety that these results can cause, then you get the relief when you get the all clear, with the realisation that it's all going to happen again in three months time.

[Mangham54]

[techieboy]

Awww mate, fantastic news. Chuffed for you all and fingers crossed for the future.

[CocoPops]

Fantastic news Lee! I know all to well of the anxiety that these results can cause, then you get the relief when you get the all clear, with the realisation that it's all going to happen again in three months time.

Indeed, as we've said before it's almost hard to think what's next. As in, we've had a year of clear scans, so are we due a bad one? Or we've had a year of good scans, so surely it must continue. But equally, we can't sit still, onwards and upwards, there are lives to lead!