505 replies to this topic

[darronwall]

Best wishes to all

[Harry Hornet]

when ever, what ever, just shout..

 

also pm'd

 

HH

[hairy]

Bl00dy Hell Lee, what a day. My thoughts with you.

[Mangham54]

Sorry to hear it Lee, but once again you clearly show strength of mind and character. Thoughts are with you all.

[Ormes]

[CocoPops]

Thank you for the kind words, both here and in the many PMs I've had. Really appreciated. Today has been a better day, the wound drain (small pipe into a collection bag) has been removed and the general anaesthetic is wearing off. The left side weakness appears to be lessening so that's a definite improvement. Looks like her PICC line will not be installed until early next week, so they will continue to use the cannula in her wrist for the IV antibiotics. Thanks again for your messages.

[Goosenka]

Love to all Lee.  Thinking of you mate.

 

Stay strong fella.

 

Goose

Edited by Goosenka, 21 January 2017 - 03:38 PM.

[james.a]

I can't add anything that hasn't already been said more eloquently than I can manage but suffice to say the family and me send our love and best wishes Lee.

[Andrew aka Stuwy]

I can't add anything that hasn't already been said more eloquently than I can manage but suffice to say the family and me send our love and best wishes Lee.

 

 

 

[CocoPops]

Not very good at updates am I!? Anyway, Alex has survived without a palm sized piece of skull since Jan this year, underwent 8 weeks of antiobiotics, administered via IV morning and night. She had to stop working/volunteering at the local school where she was helping out. Tumour still stable, no growth. She will be back in hospital soon, although were hoping to delay until after Christmas now, to have a titanium plate or composite piece of skull put back in. This uncertainty has kinda put life on hold again, but we did press on with the house extension that has lasted just over a year now, but glad its done now. It sets us up for a long time here now, without worrying if things get worse, we have scope for a downstairs bathroom should the need arise for example. Seeing Chris on a similar journey brings it home that although we have had some dark times, weve fought through them together. Were nearly at 4years since it all kicked off! Pretty crazy really. So whilst its good that shes still here 4yrs on... does that mean were 4yrs into a finite amount of time? Or does that mean were 4yrs into a journey that should get longer if/when cancer treatments improve? Thanks for your support as ever, people always ask when they see me and that helps show were not alone.

[Harry Hornet]

Lee..good news as there isnt any bad news... look at it as a bit like a repair on a hole in the sill caused by a slipping jack...

 

..when ever what ever as always

 

HH...xx

 

( we are all on a journey...just keep remember to re fuel now and again )

[PaulCP]

As HH says, good news that there's no more bad news. Keep in mind that cancer treatments are improving all the time, something that I am grateful for.

[Goosenka]

Great to hear Lee

[Acidpopstar]

All the positivity in the world dude. fcuking shitty disease and all power to you for pushing through x Sent from my iPhone using Tapatalk

[CocoPops]

Time for another update. Alex has spent nearly a year with no skull bone over the tumour area. This has meant no work (she was volunteering at the local primary school) as its not exactly normal to have no skull bone. We are awaiting a date for having a plate put back in, either titanium or composite. Next scan is 12th Jan for tumour checking.

[Ormes]

Sounds like it's all in the right direction

Edited by Ormes, 05 January 2018 - 06:33 PM.

[ChrisS1]

A friend of mine had to be without a section of his skull for approx 5 years. Replaced now and running trail marathons. Hope you get your date soon and it all goes smoothly.

[Wolfstone]

Positive thoughts with Alex Lee for 12 Jan.

[PaulCP]

Hope all goes well for you all next week. No doubt puts you on tender hooks during the short wait for the results

[Harry Hornet]

Alex will be compaining she has put on weight.. 

 

Fingers crossed for you all..especially Alex

 

HH ..xx