505 replies to this topic

[Goosenka]

Always thinking of you both!

[CocoPops]

So thanks to BUPA, I knew paying expensive premiums would help at some point , Alex goes into Oxford John Radcliffe tomorrow for Brain surgery on Friday. They are still hopeful to cut out most of the new growth, but the risk to peripheral vision is still being flagged as a major risk. Will update the thread over the weekend when we know a little more.

[pete-r]

Fast response is crucial so that's good news. Got everything crossed for you bud.

[ianrm]

Thinking of you all Lee and really hope everything goes well.

[CocoPops]

After a 5-6hr operation, shes coming round in recovery. They think theyve removed as much tumour as possible without risking stroke or vision issues, well see in next few days when they rescan. They put back a cranioplasty plate to replace the skull bone they took out and managed to use the existing skin, so no need for skin graft. Time will tell how well she heals before shes onto more chemotherapy. Keep crossing everything for us. Lee

[C8RKH]

Very best wishes and prayers for you all Lee. Fingers crossed.

[PaulCP]

Everything crossed here Lee 🤞🤞🤞

[ChrisS1]

Ditto. Everything crossed here too Lee. Sending our best wishes.

[Sutol]

Tough times Lee, stay strong.

[Captain Vimes]

Wishing her a speedy recovery. Stay strong.

[hairy]

She's a strong lady Lee. Wishing you all well.

[SteveA]

Can't even imagine how hard things must be, fingers all crossed.

[CocoPops]

Go and give your loved ones a hug!

Mrs C tonight...

[Foxy]

[CocoPops]

Crosspost from Facebook: I thought I'd better give you an update on Alex since the last one was a few days ago. Last night I had to come up to Oxford and she'd taken a turn for the worse, with possible infection which was causing her to be very sleepy and associated with the risk of having to remove the cranioplasty plate, things were not great. I stayed here until 10pm and had a conversation with her consultant. This morning I'm back to the hospital, working from her room and things have improved slightly with the use of Antibiotics etc. Still very weak this morning and very sleepy, but has managed to sit in a chair for a couple of hours this morning, which didn't seem possible last night. Thankyou to friends and family for the support, the school drop offs, the calls and messages, it all helps me which in turn means I can help Alex. Without the support from all around us, I really couldn't do this. I won't hide the fact that I've found it harder this time round, I feel like I'm constantly juggling, with things that are incredibly fragile, explosive and very important. Only with your help, am I able to maintain a normal healthy atmosphere for Sophie & Lauren. They are wonderful little girls who really shouldn't have to worry about how their mummy is poorly.

[MartinS]

Please pass on our best wishes to Alex.

You were the first people Lauren and I ever met properly via the vx's and are both such great people.

Were all thinking of you here.

 

Martin S

 

[CocoPops]

Crosspost from lastnight:

Call me a bad parent but were McDonalds for tea... still we are on the way home from visiting Alex do I think its allowed. Alex is much brighter today, the operation was completed at 3am this morning where they took out the plate 👎 and shunt. Fingers crossed now that the infection can be fought with the IV antibiotics. I fed Alex Lasagne before we left, so the fact shes eating food is a good sign even if shes not quite up to the coordination of feeding herself yet. Feeling a little more like things are heading back towards the right track. Still not quite there yet but definitely heading in right direction. Thanks for all your messages as ever and thank you for the offers of support.

[Pidgeon]

Thanks for keeping us updated and best wishes to you both.

[Sutol]

This must all be agonising for you, impossible to put into words and always on your mind. Try and get some 'you' time, a blat in the car perhaps.

[PaulCP]

Good to hear that the news is more positive than before. As above, it is hard for us to comprehend exactly what you all are having to go through once again but our thoughts and best wishes are always with you all.