505 replies to this topic

[PaulCP]

🤞🤞for you all Lee

[hairy]

My thoughts are with you Lee 

Edited by hairy, 31 October 2018 - 05:15 PM.

[FLD]

Fingers crossed its responsive lee.

[Joss]

Thinking of you all

[CocoPops]

So we just got a call (at 8pm) to say that on top of everything else.., Alex has dangerously low platelets... “6” was mentioned.
Now, that bacially means that they normally consider a platelet transfusion for anything below 10.

So we’re baxk up to Oxford tomorrow to retest bloods and look at options.

[FLD]

[ChrisS1]

It never rains but it pours.

Keeping everything crossed for you.

[fred666]

Stay strong buddy! Hope all goes well

[CocoPops]

Meant to come back and update.
After the last blood test, platelets were still very low, so she had a transfusion of platelets.

Blood test done yesterday to see if they are coming up naturally. No chemo until they are at a level deemed safe again.

[PaulCP]

As you’ve said Lee, It becomes a rollercoaster ride that no one ever wants to be part of.

I recall my GP saying “life will never be your own again, it becomes a life of continually making frequent visits to hospitals, some scheduled, some not”

Hope Alex’s platelets soon get back to normalised levels 🤞

Edited by PaulCP, 14 November 2018 - 09:06 PM.

[CocoPops]

I fear we’re into the decline. Alex has lost most feeling in her left side (she is left handed) so cannot write, cannot use cutlery in her left hand etc.
We’ve had three or four falls over the last two days, including one outside where the girls had to go ask for a neighbour to help Alex onto her feet. For sure, it’s been a tough few days

It was the twins birthday on Friday and for them to see mummy falling over onto their presents is something I can’t begin to imagine how they feel.

I sat and cried in front of them at breakfast today, I just cried, no reason, fcuk me it’s tough.

I took the girls to London last weekend so they could see the lights and it was the first time I’ve had to weigh up not taking them or leaving Alex alone at home, not a nice set of decisions but ultimately the girls need positive experiences to get them them through this. I’ve a feeling that was the first three person trip, but won’t be the last as I think that’s the new normal now.

I’ve said before to a couple of people, but I’m almost certain this will be Alex’s last Christmas, not that I’d say that to her but I can’t see things improving.

[The Batman]

Sorry to hear that stay strong for everyone

[hairy]

Really sorry Lee. Bear up, thats all you can do and do your best to stay positive. We're  all with you

[Dan r]

I am sure everyone who reads this wants to say something that helps you, but it's so difficult to find the words.

We're thinking of you all.

Sent from my G8441 using Tapatalk

[vocky]

[leevx2.2]

Cant even think what you all are going through mate ,thinking of you and the family   

[PaulCP]

As Dan & Lee have said, difficult to find the words or to imagine what you’re going through😟

We are all here for you

[Sutol]

to you all.

 

C&D

[Goosenka]

Love and hugs mate.

[ianrm]

Hugs and Love to you and all the Family Lee.