505 replies to this topic

[Duncan_F]

It's devastating and heartbreaking just reading this so I cannot even begin to imagine what it must be like for you going through this. The courage and strength you're showing in dealing with this is incredible and way beyond what I imagine I would be like faced with such an awful situation.

 

My thoughts are with you all.

[LeoD]

Thoughts with Alex, you and the whole family. Heartbreaking

[pullen vx220]

I’ve been reading your posts, over the last few weeks they truly are heart breaking, you give a true insight in what love and family are really about, your own strength is so inspirational.

No words...

[A.C.oral]

I've been following your posts for a long time and like many others, this brings tears to my eyes for your courage and pain.
Take strength knowing that many people out there are thinking of you at this time.
Thank you for sharing.

[C8RKH]

Lee. Keep strong as you have been. Terrible time for you all but I know you, Alex and the girls will have created wonderful memories so remember to walk through them often at this time.
Your in my thoughts often mate.

[turbobob]

I don't come on here very often these days, but having just read the latest updates it's hard to find words to sum up my thoughts and how you all must be feeling. I'm really sorry to read this, and your collective strength is quite inspirational and for me really puts things into perspective. 

 

My thoughts are with you also 

[CocoPops]

Another tough day in the Coco household.

Alex is becoming weaker, more and more dosed up on morphine.
Strangely we are seeing glimpses of the original Alex, the loving, caring, humourous Alex that the tumour somewhat robbed us off.

It’s a matter of time now, it’s heartbreaking it really is.
Counting breathing, knowing each one could be last.
Every time it goes shallow, we hold our breath just in case.

Alex hugged the girls before they went to bed, it took immense effort for her to do so, but I’ve no doubt the girls will cherish those cuddles for many years to come.

Not sure what I feel right now.
Angry (at the tumour), cheated (by life), upset(for our girls), happy(knowing she is safe, secure, pain free). It’s a smorgasbord of emotion. I’ve shed tears, free flow at times and laughing at others.

Give your loved ones a hug and for Christ sake, heal those wounds if you have any before it’s too late.
Some of the comments on my Facebook status go to show how loved she is and, luckily, how good we’ve been as a family unit.
https://www.facebook...155609442697191 if you want a read...

[Foxy]

grouphug x

[PaulCP]

Not sure what I feel right now.
Angry (at the tumour), cheated (by life), upset(for our girls), happy(knowing she is safe, secure, pain free). It’s a smorgasbord of emotion. I’ve shed tears, free flow at times and laughing at others.

Give your loved ones a hug and for Christ sake, heal those wounds if you have any before it’s too late.
...

Feelings that are all perfectly natural and understandable.

Sound advice in your last comment, no one knows what life has in store just around the corner for anyone.

[ianrm]

My thoughts are with Alex, you and all your family as they have been ever since you first told us of the first diagnosis At least you are all together to spend precious time together, you are all very brave. 

 

     

[CocoPops]

I’ve agonised A LOT over setting up a GoFundMe page but I’ve had some lovely PMs offering help and I figured people would only offer if they wanted to help.

I don’t have an expectation, I don’t have a target (you have to select one).
The choice is yours, so the option is there.
I hope I’ve done it right, I’ve never set up a GoFundMe page before. I think you can do it anonymously if you don’t want your name attached? I welcome your comments on the content.

Waffling speech over, here’s the link:
https://www.gofundme...membering-mummy

Please don’t feel obliged to visit the page. Your words of support and encouragement are helping me a lot. Equally, if you feel inclined to share the page then I wouldn’t say no, I want everyone to know how important Alex is to our family, especially that the girls know their mummy was loved by many.

[The Batman]

done

[CocoPops]

Truly humbled by the response, I wasn’t even sure if I should.

[SteveA]

[CocoPops]

Again Alex continues to battle on.
Her swallowing mechanism is failing though, so that won’t help her now.

I sat up until 2:30 this morning, then handed over to my mum/sister.
She is never alone in this, she always has someone with her.

The girls went back to school today, I think with a level of trepidation.

[jules_s]

Bah - no worky

 

I'll re try later

[CocoPops]

Another long night, she just woke and was very confused, almost hallucinating about taking girls to school.

Had to sit and calm her by saying it was in hand and that we would have a duvet day. Then proceeded to tell her that we would imagine a holiday to San Francisco. Was a wonderful moment of escapism, explaingnwhat we would do, what we would see.

We were lucky enough to travel to SF before the girls arrived, was her favourite place we travelled together.

Calmed her down, and she’s now exhausted and sleeping.
Breathing is noisy, irregular and a huge effort.

She won’t/can’t give up.
It’s exhausting just watching, being there in case she wakes, point proven earlier etc.

Not much happens online at 3am

[The Batman]

Im here bud!

 

Its amazing how strong she is

[SteveA]

SF is great my wife and I also went before we had children. Riding on the outside of a trolley, listening to a homeless mans wonderful rendition of Fleetwood Mac's landslide and eating clam chowder, amazing memories.

[MartinS]

This is the first thing I look at each day on line and its heart-breaking but inspiring, to see how your dealing with this awful time and

the strength of Alex throughout it all.

Saying our thoughts and best wishes are with you does nothing much, but that they really are.

 

Martin S and family

Edited by MartinS, 08 January 2019 - 09:12 AM.